A Baramoter of Health - Part 4

(This is a continuation of yesterday’s blog.)  Late in April of 2013, my left kidney was removed during an operation that was supposed to be done laparoscopically, and take just a couple of hours.  The operation ended up taking five hours, and required a full incision on my left side running from just under my rib cage all the way down and over to the left side of my waist. 

It took 65 staples to close the incision, plus more to close up the four small incisions made initially to try to do the procedure in the less invasive laparoscopic method.  My doctor had me up and walking less than 12 hours after the surgery.  I was to walk as much as possible in the halls of the hospital, to begin to recover my strength.

Moving with the incision was difficult, even with the pain medication.  I suppose in a way it is kind of like childbirth – no one really talks about the pain ahead of time – they just deal with it afterwards.  I guess that is a good thing.  Now, all these months later it doesn’t seem like such a big deal, but at the time it was.

During post-surgery blood testing, it was discovered that my iron levels were beginning to rise.  That was exceptionally good news for me.  Having to take iron supplements does not sit well with my system.
  

While we were discussing my post-op care, my doctor told me he was going to push me to regain my strength.  The first day back home from the hospital, I had to figure out how to do simple things like sit in a chair and stand up, get dressed, take a shower, use the facilities, get in and out of bed – just normal movement – without hurting my side or ripping out the staples.

The second full day home I began (at the doctor’s orders) to walk around the neighborhood.  The first day, I probably only walked a half a block. By the time I had gone that far, I was so glad to be back home.  

During those early days of recovery, I was quite terrified that I would trip over an uneven sidewalk, or some debris in my way, and rip open my incision.  So my family took turns walking with me, holding my hand as I walked. 

My daughter came home during the week on her lunch hour to take me for a walk.  In the evening my husband took over that duty or my son.  Every day I walked just a little farther than the day before, always pushing myself, all with my doctor’s blessing.

A week after surgery the staples came out which was definitely less painful than I thought it would be.  Surprisingly, I barely felt it when each one was removed.  The nurse put steri-strips over the incision to promote healing, but it wasn’t until the strips fell off about two weeks later that I had any confidence that it would not pull apart!

I returned to work about three weeks after the surgery, but it wasn’t until my six-week post-op check that I felt I was ready to return to the disc golf course to attempt to play again.  That first day, I was oh, so, cautious every time I threw.  My entire left side had no feeling due to the nerves that had to be severed during surgery.  So I had to relearn how to make my body twist so I could throw properly.

On my first trip to play disc golf I only played four holes – which was enough to push my endurance but not enough to hurt myself.  From there I tried to play at least one additional hole on each subsequent outing.

It wasn’t until three weeks before the 2013 Worlds that I played my first 18 holes, post op.  After that, I added a few more holes every chance I had, until I was up to 36 holes in one day.  I kept pushing, doing a little bit more every day, so I was ready to head to Emporia, KS for the tournament.

It took all my energy just to get myself around the course, so I took a minimum of discs in my disc golf bag, and had plenty of water to stay hydrated.  I also purchased a little tripod stool so that I could sit and rest my legs when I got tired.  It was interesting how just a brief one or two minute break renewed my energy and allowed me to continue on to the end of the course.

Once again, disc golf had become a barometer of health for me.  Even as I was gaining back strength post surgery, I realized that I was feeling so much better inside.  It had been a long time since I felt strong.  For the first time, I thought that just maybe, if I was smart about it, I could make it through the tournament.

So, with my discs in my bag, plus a water bottle and my stool, I was as ready as I was going to be!  It was off to Emporia, KS for me.

I was going to the 2013 PDGA Amateur Disc Golf World Championships!

A Barometer of Health – Part 3

 (This is a continuation of yesterday’s blog)

After having two lithotripsy treatments to remove a staghorn kidney stone in 2012, I was beginning to feel more like my old self. 

My son Danny had been encouraging me all year to be sure to register for the 2012 Orlando Open.  If I successfully competed in that event, I would have an automatic invitation to compete in the 2013 PDGA World Disc Golf Championships.  He wanted me to participate in that tournament, as he had gone to Worlds in 2012 and he wanted us to go together in 2013.

Being a more cautious, one step at a time person, I figured, first things first, and decided to see how I did in the Orlando Open that fall.  I prepared pretty well for the amount of throwing and walking I would have to do, and for my first tournament, I was pleased with the outcome.

So again, talk in our home centered on going to Worlds in 2013.  We needed to register for that event in March of 2013 before the tournament was opened up to any registered member of the PDGA (Professional Disc Golf Association) rather than just those who qualified for it.

There were a few times when I still didn’t feel quite right, like something was still wrong internally, but without being able to put words to the symptom, it was hard to figure out what doctor to go to or what to tell him or her when I got there.  My energy level was beginning to come back, but some days I still seemed extra tired.

So, in March of 2013 we signed up for Worlds and paid for our hotel room.  Travel arrangements would be made closer to the event. 

It was later that month that I went back to my urologist for a follow-up exam following the removal of the kidney stone I’d had the year before.  They did an ultra sound of the kidneys which indicated that more tests were required.

Three weeks later I returned to the urologist’s office to have another CT scan, and this time they were able to administer the contrast medication.

 

The great thing about my urologist is that those tests are done right in their offices and an initial reading is made immediately.  As we were looking at the films together, my urologist discovered that I had no kidney function on my left kidney!

Wow!  That was a shocker.  I immediately was sent back to the Same Day Surgery Center to have a stent put in place to see if he could get kidney function to return.  That attempt proved to be unsuccessful, and in fact caused me great pain for about a week. 

At that point my doctor was very concerned and put me in the hospital immediately to try and discover the source of the pain.  I probably had 20 different tests over the course of ten days, not to mention daily blood testing and nothing obvious showed up except for the fact that I was extremely anemic, and in a lot of pain.

Ultimately, after seeing a plethora of doctors, they decided that my kidney was the source of all the problems and so surgery was scheduled to remove it.  I was told the procedure would be done laparoscopically with four small incisions, through which the organ would be removed.

Five hours after the procedure began (which we had been told would be a two-hour operation) the kidney was removed.  It was very infected and enlarged which meant that the surgeons could not remove it through the small incisions.  Instead, a large incision was required so that they could remove the kidney and clean out the abdomen of all the infection.  I awoke later with 65 staples in my abdomen and side.

However, the very next day, when I got out of bed, I knew I was better.  Oh, I had plenty of pain from the incision, but inside….I felt great.  The thing that I knew was wrong but could never describe was GONE!

Prior to the surgery I had told my doctor that I had planned a trip to Worlds.  Could I still go if I had this surgery?  Of course, he based his decision on the anticipation that I would have four small wounds, and so he told me Yes!  

After the outcome of the unexpected complicated surgery, I just didn’t know what would happen.  At my one week post- surgery check-up, my urologist told me that I could still go as long as I wasn’t in any pain.

The question was….could I be ready in time?  My side had to heal, I had to be able to twist my body, I was very weak after the surgery, and I hadn’t been on the disc golf course in over a month prior to the surgery.

As with most things in life, I decided it would be best to take this challenge one day and one obstacle at a time.  Come back tomorrow for the final episode in this story!

A Barometer of Health - Part 2

(This is a continuation of yesterday’s blog)  After being sick on and off for a couple of years, my doctor finally sent me to have a CT scan done of my kidney.  When I arrived at the imaging center, blood was drawn to determine if there were any obvious problems.  Then, into the CT machine I went.

It was explained to me that they would do a series of images without giving me any contrast.  Then they would give me the contrast and repeat the test for clearer detail regarding how the kidneys were functioning.

I remember distinctly when the CT tech came to my side after the first series of images had been done.  She said, “Mrs. Voss, we will not be giving you the contrast.  Your blood work indicates that your kidneys are under distress, and if we gave you the contrast, that would further stress your kidneys.”

In a way, I felt a bit cheated.  I thought that this test was going to finally give an answer to why I had been feeling so awful for so long.  I got up off the table, gathered my belongings and returned to work.

The following day, I got a call that changed everything.

“Mrs. Voss?  This is your doctor’s office.  (Ok!  Warning!  Anytime the doctor calls you – it is BAD!)  The CT you had yesterday indicates that you have a staghorn kidney stone.  We need you to visit an urologist right away.”  I’m surprised that I had the wherewithal to ask some questions, such as, what is that, how is it fixed, how bad is this?  I had lots of questions but of course received no answers.

I was, however, given the name of an urologist to call to schedule an appointment.  I made the call almost immediately and was asked the usual questions about was I a new patient, insurance, blah, blah, blah…..  When they asked the reason I was calling, I mentioned that I’d had a CT scan the day before and they discovered I had a staghorn kidney stone.  Things changed very quickly after that.

I was given an appointment for the following day, when I met with the urologist.  After reviewing the films, and taking some x-rays of his own, he directed me to view the films with him.  There it was, right on the x-ray – a large object in my kidney, about the size of a thumb.  He explained what it was, and then gave me the options for removal.

The very next day I was in the Same Day Surgery Center having a procedure called a lithotripsy (ESWL).  I went back to the urologist in one week where they repeated the x-ray.  Magically, nearly all of the stone debris had been flushed from my kidney except for one, small chunk.

That meant a return to the Same Day Surgery Center for the procedure to be repeated.  The second try eliminated all the calcified material from my kidney.  I was sent on my way, and told to come back in six months for a follow-up.  I was also told to be on the look-out for any further fevers, or symptoms of a kidney stone that might have come back.

A few days after the second procedure I was back on the disc golf course, glad to be able to once again play 18 holes of disc golf.  I thought that my problems were over.  I was feeling better, though still not 100%.  I figured that in time, I would be back to full strength and ready once again to resume playing the sport that I had grown to love.

However, I later found out that there was more serious trouble yet to come.  (Come back tomorrow for part 3.)